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Sunday, 29 July 2018

Parkinson's, Sewing and Me.


With thanks to Jaycott.co.uk.

Please note that these tools are suitable for most disabilities, not just Parkinsons


See also Parkinsons UK for lots more information about Parkinson's

I have been asked many times to write this blog post and I kept putting it off. It is not easy to write but if it helps anybody then that makes me very happy.
The tools and equipment featured are all from jaycotts and I will give you the links as we go along. Please note that the products featured are suitable for use no matter what your disability, be it arthritis or poor eyesight.

Well, Christmas is here and it's a nightmare! The shops are busy, my town centre is being " updated" and half the parking is gone so I can't shop here until the roads reopen, it means a 15 mile drive to the next big town.
And the crowds, shopping is stressful enough at the best of times but add to that busy stores and car parks, queuing it becomes an impossibility.




Food and medication have to be carefully timed, I mean meticulously timed, it's no good eating or taking meds an hour long of sync, that just makes my symptoms worse. Yes I can enjoy a drink, but not too much because of the medication.

I haven't sent Christmas cards because I can't write them. Life is so very different. If you know anybody with Parkinson's do look for ways to make things easier for them. If they are eating with you ask what time would be best for them and they will give you a window. Food and medication often have to be taken an hour or so apart, and some foods cannot be eaten at all. A discreet conversation would prevent embarrassing moments on the day. Cut your guests turkey very thinly and add lots of gravy as swallowing is affected by the disease. Provide a steak knife too, they do help.
I might make light of my condition, but it isn't easy to live with.



Parkinson's is not what I want for myself or anybody else for that matter,quite frankly it stinks. One day I may feel well (ish) there is always an ish! Other days I cannot even get out of bed.

Currently around 127,000 people in the UK are living with Parkinson’s, an incurable, degenerative neurological condition which leaves people struggling to walk, talk and sleep

It's made harder by the fact that I live alone, people with disabilities become somehow undateable, I mean it's not the best chat up line in the world is it? " Hi, I'm Angela, I suffer from Parkinson's, I have chronic fatigue, I drop things constantly, I can't always find the word I want and I might fall over and appear drunk" come on! Yes I know I am positive and I am a fighter but sometimes I don't want to be, you know? I want to be " normal" I don't want to have to collect two carrier bags of medication every month and spend two hours every week sorting it out.



And I am really not complaining because I am grateful, but I would love to be able to earn my own money and not be means tested. Hey I'd love new carpets! Correction I NEED new carpets but I don't have that sort of money! I cannot just go out on a whim if I am feeling low or buy myself a treat - like those carpets, or anything really.
I lost a 30K + salary when I was diagnosed, now I have to prove to people that I really do qualify for the little I get, just like millions of others.
I didn't want to give up work. Early " retirement" was not an option. It was tough giving up a career I loved.